2nd video about CureCN released
June 2019 – After a successful first project period, the CureCN project has published another video to inform about Crigler-Najjar patients and the project’s current activities. The video clip has been realized during the 1st Progress Meeting in Riccione, Italy. Researchers, doctors and patient organisations inform about the importance of the CureCN project. Patients describe how the disease affects daily activities and their overall quality of life. While talking about current treatment possibilities, the concerned patients explain that finding a curative gene therapy for the so far incurable Crigler-Najjar syndrome brings new hope for patients and their families.