Founded in 2003, the French Crigler-Najjar Patient Association (AFCN) is the only national charity in France focused on Crigler-Najjar syndrome (CN) care and advocacy. Its mission is to raise awareness on CN and to improve the treatment and quality of life for patients. In this context, AFCN contributed to the development of a fiber optic phototherapy device, which is now being tested in a clinical trial. AFCN has established a strong connection to the Reference Centre for Inherited Hepatic Metabolic Disease.
Staff members involved
