Since 1996, the Italian Crigler-Najjar Patient Association (CIAMI onlus) has been raising awareness of the disease aiming to foster research to find curing treatments against Crigler-Najjar. In this context, CIAMI has sponsored research projects to develop innovative portable phototherapy devices with LEDs technology. The association also works together with the national and local health services to assure the same assistance to all patients. The association boasts an important collaboration with the Military Pharmaceutical Lab in Florence (Stabilimento Chimico Farmaceutico Militare) where an orphan drug named colestiramin to lower bilirubin is developed exclusively for CN patients.
Staff members involved
- Rossana Cantù GroppiDeputy Team Leader
- Flavio RonchiTeam Member
40033 Casalecchio di Reno (BO)