Italian Crigler-Najjar Patient Association

Since 1996, the Italian Crigler-Najjar Patient Association (CIAMI onlus) has been raising awareness of the disease aiming to foster research to find curing treatments against Crigler-Najjar. In this context, CIAMI has sponsored research projects to develop innovative portable phototherapy devices with LEDs technology. The association also works together with the national and local health services to assure the same assistance to all patients. The association boasts an important collaboration with the Military Pharmaceutical Lab in Florence (Stabilimento Chimico Farmaceutico Militare) where an orphan drug named colestiramin to lower bilirubin is developed exclusively for CN patients.

Staff members involved

  • Photo of
    Rossana Cantù Groppi
    Deputy Team Leader
  • Photo of
    Flavio Ronchi
    Team Member
Italian Crigler-Najjar Patient Association logo
Italian Crigler-Najjar Patient Association
Via Ivo Peli, 21
40033 Casalecchio di Reno (BO)
Italy